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Latest News and Research

Sickle Cell Disease Treatment Act of 2018 Becomes Law

The Sickle Cell Disease and Other Heritable Blood Disorders Research, Surveillance, Prevention, and Treatment Act of 2018 (S. 2465) which reauthorizes a sickle cell disease prevention and treatment program and to provide grants for research, surveillance, prevention, and treatment of heritable blood disorders. To learn more click here.

60 Minutes Showcases Upcoming Gene Therapy

There are many gene therapy treatments in the works for individuals with sickle cell disease. One initiative by NIH, provided a segment on 60 minutes of its current research. To learn more click here.

What are the newest sickle cell disease trials?

To learn more about sickle cell disease trials, please click here.

FDA Approves New Sickle Cell Drug

After more than 20 years without any new medication specifically for sickle cell disease, the FDA approves Endari to Emmaus Medical Inc in 2017. During a randomized trial, patients who received Endari reported less pain, less acute chest syndrome and had reduced hospitalizations. To learn more click here.

Are there any sickle cell trait trials?

To learn more about sickle cell trait and any upcoming trials click here.

First U.S. Patient receives CRISPR therapy

CRISPR uses its gene therapy in the first US patient. To learn more click here.