AUSTIN, TX —Sickle Cell Association of Texas Marc Thomas Foundation is returning to the streets of Austin June 1 for the 9th annual Walk for Sickle Cell. The walk, a tradition in the capital city, raises awareness and funds for this life-threatening disease affecting thousands of Texans.

“We’re so thrilled to once again bring the Sickle Cell community of Austin together for a morning of fitness, fundraising, and education,” stated President Linda Wade.

Beginning at the Doris Miller Auditorium, the annual walk unites the Austin Sickle Cell community while alerting others of this oft-under-discussed disease and the struggles of the under-served community it affects. The event begins at 9 a.m. at 2300 Rosewood Ave. and is open now for registration. There will be day-of registration at 8 a.m, but participants are encouraged to register in advance and can do so here: WalkForSicklecell.org.


This year, funds raised from Walk For Sickle Cell will benefit the Camp Cell-A-Bration, a yearly camp for kids (aged 6-14) suffering from Sickle Cell. Funds will also be used to awards scholarships to families. Last year the walk raised more than $4,000 for the camp and saw over 120 participants. Camp Cell-A-Bration is an opportunity to let kids be kids for a week in the heart of Texas and truly helps transform lives.


"The impact of this one morning is felt the rest of the year, and we cherish the opportunity to make a difference for the families we serve," Wade stated.

Sickle Cell disease currently affects 100,000 Americans according to the CDC. Sickle Cell disease occurs among 1 out of every 365 African American births and 1 out of every 16,300 Hispanic births. Walk for Sickle Cell Austin is one of three walks hosted by Sickle Cell Association of Texas Marc Thomas Foundation this year. There will be a San Antonio Walk Sept. 28 and a Houston Walk Oct. 19. Learn more about those here: SickleCellTX.org/walk.html.

A LIFE-THREATENING ILLNESS DOESN’T STOP THESE CAMPERS
A Week Filled with Fun for Children with Sickle Cell Disease

SAN ANTONIO, TX ­— Every year the Sickle Cell Association of Texas Marc Thomas Foundation (SCATMTF) hosts 50 special needs children between the ages of six and fourteen for summer camp, Camp Cell-A-Bration. This camp exists specifically for children with sickle cell disease. Camp Cell-A-Bration is August 4-9, 2019 at Camp for All in Burton, Texas.

Camp Cell-A-Bration camper, Savannah Mitchell (age 12) says, “You’re always getting told no you can’t go to that friend’s house because you just got out of the hospital” when asked about her disease.

Camp Cell-A-Bration is a place for kids to have the freedom to just be a kid. A few activities at camp are horseback riding, sports, arts and crafts, and water activities. Many of the children look forward to camp all year. Many say it feels like home and a place of belonging.


“I find that kids who have gone to camp when I see them in the clinic afterward they have a more positive attitude about their disease,” states, Dr. Melissa Frei-Jones, a pediatric hematologist/oncologist.

As most of our families are economically disadvantaged, Camp Cell-A-Bration is free for every child with sickle cell disease. Campers are not automatically accepted into Camp Cell-A-Bration. Factors including; space, funding, past camp behaviors and/or certain factors determine if a child is permitted to attend.

Sickle cell disease is the most common blood disorder in the world. The most prevalent symptom of this disease is pain. It is not uncommon for children with sickle cell disease to have suffered strokes, jaundice, pain crisis, chronic blood transfusions, surgeries, acute chest syndrome and damage to their internal organs.

SCATMTF is now accepting donations to help support campers and camp activities. If you’d like to donate or register your child please visit www.sicklecelltx.org. If you have an interest in volunteering at camp please email info@sicklecelltx.org

AUSTIN, TX — Wednesday, June 19 is globally observed as World Sickle Cell Day. The goal for this day is to increase public knowledge and an understanding of sickle cell disease, along with the obstacles experienced by patients, their families and caregivers. On this day, the Sickle Cell Association of Texas Marc Thomas Foundation (SCATMTF) is launching its 2nd Annual 24-hour campaign to educate individuals about sickle cell disease in the form of a social media trivia game.

‘‘Not everyone knows or understands what Sickle Cell Disease (SCD) is, so we wanted to find a fun way to disseminate accurate information about SCD in order to educate as many people as possible”, stated COO & Attorney Alysian Thomas, JD.

SCATMTF’s campaign will begin June 19 at 9 a.m. The questions will be posted on its Facebook (@sicklecell. texas), Twitter and Instagram accounts (@sicklecellmtf). The individual who answers the most questions correctly and fastest will receive a Walmart gift card. There will be a random drawing for users who leave comments and are following SCATMTF on all social accounts to win a Walmart gift card as well.

“Sickle Cell Disease is the most common blood disorder in the world and it mainly affects African Americans, Hispanics, Asians and people of Mediterranean descent. World Sickle Cell Day was created to bring awareness to individuals and families affected by sickle cell disease. In the US there are more than 100,000 individuals affected with sickle cell and more than 4 million carry the silent sickle cell trait,” CEO & President Linda Wade stated.

The Sickle Cell Association of Texas Marc Thomas Foundation provides many services such as case management, education, sickle cell testing, support services, research and much more. You can learn more about our services here: https://www.sicklecelltx.org/services.html

Austin Walk for SIckle Cell Set for June 1

July 10, 2019

July 10, 2019

June 19,, 2019

HOUSTON, TX — Every year the Sickle Cell Association of Texas Marc Thomas Foundation (SCATMTF) hosts 50 special needs children between the ages of six and fourteen for summer camp, Camp Cell-A-Bration. This camp exists specifically for children with sickle cell disease. Camp Cell-A-Bration is August 4-9, 2019 at Camp for All in Burton, Texas.

Camp Cell-A-Bration is a place for kids to have the freedom to just be a kid. A few activities at camp are horseback riding, sports, arts and crafts, and water activities. Many of the children look forward to camp all year. Many say it feels like home and a place of belonging.

Camper, Jodelys DeJesus (age 14) says, “The counselors and the campers here and all the staff they’re like my second family. Here at camp, you can reach past your limitations and it feels like you can do anything“.

As most of our families are economically disadvantaged, Camp Cell-A-Bration is free for every child with sickle cell disease. Campers are not automatically accepted into Camp Cell-A-Bration. Factors including; space, funding, past camp behaviors and/or certain factors determine if a child is permitted to attend.

Sickle cell disease is the most common blood disorder in the world. The most prevalent symptom of this disease is pain. It is not uncommon for children with sickle cell disease to have suffered strokes, jaundice, pain crisis, chronic blood transfusions, surgeries, acute chest syndrome and damage to their internal organs.

“When you have a sickle cell crisis it feels like your bone is literally crushing. They ask to range your sickle cell pain from one to ten but that’s not even enough to describe it because it feels like on a magnitude of 10,000” says, Camp Cell-A-Bration camper, Aliyah Adeogun (age 13).

SCATMTF is now accepting donations to help support campers and camp activities. If you’d like to donate, or register your child please visit www.sicklecelltx.org. If you have an interest in volunteering at camp please email info@sicklecelltx.org


May 17, 2019

Primary Media Contact: Delaney Reece, (512)458-9767, dreece@sicklecelltx.org

JUNE 19 WORLD SICKLE CELL DAY
Marc Thomas Foundation Spreading Awareness for Disease that Affects Everyone

A LIFE-THREATENING ILLNESS DOESN’T STOP THESE CAMPERS
A Week Filled with Fun for Children with Sickle Cell Disease

Sickle Cell Association of Texas Marc Thomas Foundation works to improve research and quality of life for individuals and their families living with sickle cell disease and sickle cell trait. Founded in 1997, the Association has offices in Austin, Houston and San Antonio, all working to educate, support and care for those living with Sickle Cell Disease.​

Toll-Free Helpline:  (844) 994-HOPE

 (844-994-4673)

Copyright 2013-2015. Sickle Cell Association of Texas Marc Thomas Foundation. All Rights Reserved.


SICKLE CELL ASSOCIATION OF TEXAS MARC THOMAS FOUNDATION

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